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glejak.pl - złośliwy nowotwór mózgu, objawy i leczenie • Zobacz wątek - Astrocytoma anaplast. G3 - pytanie o Temodal [przeniesienie]
Strona 1 z 3

PostNapisane: Pt mar 23, 2007 7:33 pm
przez Anna

PostNapisane: So mar 24, 2007 11:00 am
przez martuch

PostNapisane: N mar 25, 2007 8:56 pm
przez Agnieszka
To trudne pytanie. U mojej mamy rozpisano temodal: pierwszy rzut: radioterapia skojarzona z temodalem (w tej czesci podawano mamie najnizsza, wyliczona dla jej wagi dawke), po 7 tygodniach terapii skojarzonej nastapila przerwa - 25 dniowa. Potem kolejna sesja 5 dni temodalu w podwojnej dawce, 25 dni przerwy, 5 dni sesji w jeszcze wiekszej dawce, 25 dni przerwy, 5 dni (w tej samej co poprzednio). I tak do ukonczenia pierwszego 6-cio miesiecznego kursu. Lekarze na zachodzie proponuje kontynuowanie terapii. Lekarz na Ursynowie mowil mi ze ma pod opieka pacjentow ktorzy biora temodal nawet 4 lata. Na forum byla nasz Madzia, ktorej maz Kuba bral temodal 3 lata. Wszystko zalezy czy w miedzyczasie nie wystapi wznowa albo zalamanie odpornosci organizmu (wazne sa wyniki badan krwi).

PostNapisane: Pn mar 26, 2007 8:36 am
przez gocha
a nam na Ursynowie odmówiono temodalu między innymi dlatego, że guz nie został wycięty całkowiecie.

aż się chce do lekarza chodzić ;o)

temodal

PostNapisane: Pn mar 26, 2007 12:40 pm
przez Agnieszka
Chyba nie dopisalam najwazniejszej rzeczy: my za temodal placilismy sami. NFZ pomimo skladanych przeze mnie prosb nie dolozyl nam do terapii ani jednego grosza. Osoby o ktorych pisalam tez finansowaly terapie z wlasnych funduszy.

AA 3st

PostNapisane: Cz mar 29, 2007 5:17 pm
przez anula007

PostNapisane: So mar 31, 2007 8:19 pm
przez Anna

PostNapisane: So mar 31, 2007 10:04 pm
przez moto_kate

PostNapisane: So mar 31, 2007 10:12 pm
przez moto_kate

PostNapisane: N kwi 01, 2007 10:23 am
przez gocha

PostNapisane: Śr kwi 04, 2007 9:00 am
przez Anna

PostNapisane: Śr kwi 04, 2007 8:00 pm
przez gocha
Aniu,

gdybyś w wolnej chwili przysłała link na ten dokument to byłabym wdzięczna. przegrzebałą strony NFZ i chyba diabeł ogonem nakrył. nie widzę. tych zarządzeń prezesa jest od groma. wyszukiwarka nic nie znajduje. albo ja ślepa albo nieudolna (albo jedno i drugie).

PostNapisane: Śr kwi 04, 2007 8:36 pm
przez moto_kate

PostNapisane: Cz kwi 05, 2007 8:15 am
przez gocha

PostNapisane: Cz kwi 05, 2007 11:25 am
przez Anna